Guide

After Diagnosis & Self-help

American Cancer Society

Phone 800-227-2345
Website http://www.cancer.org

Description

Our new Personal Health Manager Kit is an easy-to-use tool designed to help patients organize and keep track of appointments, medication, test results, insurance, bills, and various other logistical and practical details associated with cancer. The kit's content can be personalized to provide information and resources which will help address the needs of a particular cancer patient or caregiver. Kits order and shipment is free of charge.

Will assist with transportation for any cancer treatment.  It requires 4 business days advance notice.  Please provide the date, time, location and duration of appoint.  They will work with you if you have a regular schedule of appointments needed.  This program is 100% based on volunteers and patient must be able to get in and out of vehicle without help.

Cancer Resources

Description

Cancer information on various forms of cancer can be found at the following:

Cancer Support Groups
Survivorship - Road to Wellness (meets quarterly)
Lafayette Cancer Care (765) 446-5050
1345 Unity Place, Ste #135, Lafayette

YWCA (765) 742-4375
Women with Cancer (last Tuesday of every month)
605 N. 6th Street, Lafayette

Lymphedema (765) 446-5250

Breast Cancer Resources
Susan G. Komen (800) 462-9273
Indiana Women in Need: website: www.iwinfoundation.org

Colon & Rectal Cancer
Colon Cancer Alliance: www.ccalliance.org
National Cancer Institute (800) 422-6237 or www.cancer.gov

Head & Neck Cancer
Support for People with Oral Head and Neck Cancer: (800) 377-0928 or www.spohnc.org

Leukemia & Lymphoma
Leukemia & Lymphoma Society: www.lls.org

Lung Cancer
American Lung Association: (800) 548-8252 or www.lungusa.org
Lung Cancer Alliance: (800) 298-2436 or www.lungcanceralliance.org

Melanoma
Skin Cancer Foundation: www.skincancer.org

Prostate Cancer
Prostate Cancer Foundation: (800) 757-2873 or www.pcf.org
Prostate Cancer Institute: (866) 469-7733 or www.prostate-cancer-institute.org

Stomach Cancer
National Cancer Institute: (800) 422-6237 or www.cancer.gov
American Cancer Society: (800) 227-2345 or www.cancer.gov

 

 


 

Cancer Support Community

Phone 1-888-793-9355
Website http://www.cancersupportcommunity.org

Description

A global network of education and hope for cancer patients and those supporting them. The Wellness Community & Gilda's Club joined to form CSC.

Helpline hours: 9 am - 9pm M-F staffed by oncology counselors and therapists who provide supportive counseling, information, referral and education.  

Cancer.Net

Website http://www.cancer.net

Description

Web-based resource for patients and their families covering a variety of topics to aid coping with the disease. Information provided by ASCO (American Society of Clinical Oncology)

CancerCare, Inc

Phone 800-813-HOPE/800-813-4673
Website http://www.cancercare.org

Description

Provides free professional support services to anyone affected by cancer, caregivers, children, loved ones and the bereaved. Services provided by trained professionals. Caregiving fact sheets, financial info, and much more on website.

Community Cancer Network (CCN)

Phone 765-446-5464
Website http://www.communitycancernetwork.org

Description

Mission: To support the non-medical needs of area cancer patients in collaboration with care providers and other community resources.

Service Area:  11 North Central & West Central Indiana counties - Benton, Cass, Carroll, Clinton, Fountain, Jasper, Montgomery, Newton, Tippecanoe, Warren, White

Call CCN direct or be referred by health care provider, family or  friend  to become a Community Cancer Network client

Free Services (not limited to):
-Client Advocacy
-Food Pantry (Shelf Stable Food/Limited Toiletries/Limited Cleaning Supplies)
-Durable Medical Equipment (Wheelchairs, Walkers, Canes)
-Limited Financial Assistance (qualifying guidelines/ex: Fuel Card, Utility/Rent/Mortgage/Prescription Payments)
-Transportation to/from cancer treatment
-Wig Salon (intimate environment with broad selection)
           ~And so much more! 

Clients are encouraged to share their unique needs so CCN may address them or refer them on to a collaborating organization

Family Caregiver Alliance

Phone 800-445-8106
Website http://www.caregiver.org

Description

Supports and assists caregivers through education, research, services & advocacy. Services include publications, caregiver training, workplace program, research & policy initiatives.  Be sure to check out the website for further information.

Franciscan St. Elizabeth Home Health Care and Hospice

Address 1701 S. Creasy Lane, Lafayette, IN 47905
Phone various-depending the service
Website http://www.ste.org

Description

St. Elizabeth Home Health Care offers a wide variety of health care services in the comfortable environment of your own home. Familiar surroundings of home often decrease anxiety and make it easier to get well. It also provides more cost-effective alternatives to hospitalization.

Our focus is on providing compassionate home health care and the support you need to achieve quality of life and independence. Patients choose us because we care, and our patient satisfaction surveys consistently indicate a more than a 98 percent satisfaction with our services.

After Diagnosis and Self Help - Has partnered with Cancer Support Community to develop a monthly support group that will start in the last quarter of 2017, so please call for more details.  765-502-4122

Nutrition - A registered dietitian can separate facts from fads and explain the latest scientific findings into easy to understand nutrition information. Dietitians help promote good health through proper eating. Franciscan St. Elizabeth Health offers individualized and group nutrition counseling to meet your nutrition goals by working with you to develop a plan that fits your lifestyle. A physician referral is needed to make an appointment. Ask your doctor for a referral for medical nutrition therapy.  For questions please call 502-4230

Palliative Care Team - Provides Consultation for hospitalized patients, to assist with support and symptom management for chronic and/or life-limiting illnesses. Also, assists with Goals of Care and Advance Care Planning.  Provides end of life care for all ages and all cancer diagnosis (skilled nurses, social workers, aides, spiritual care, volunteers and bereavement services). Phone: 765-502-4949

Physical Therapy- Outpatient physical therapy can help decrease pain, improve mobility and assist the patient with maintaining as active a lifestyle as possible. 765-423-6885

Lymphedema Therapy: Lymphedema is a swelling of a body part, most often an arm or a leg, caused by the abnormal accumulation of lymph fluid. Lymphedema therapy helps relieve this often painful swelling that can result from trauma, surgery, infection, disease or other factors. We have an experienced lymphedema team consisting of three nationally certified lymphedema therapists trained to treat any involved body part. The lymphedema team also provides wound care when appropriate. Phone: 765-423-6885

Speech Therapy -The ability to communicate and understand others is vital to independence. Speech Language Pathologists are trained in the techniques designed to improve speech, language, and cognitive disorders. Speech Language Pathologists also work with individuals with dysphagia or difficulty swallowing. Phone:  765-423-6336

Hospice - Hospice gives comfort and support for persons in the last phases of incurable disease so they may live as fully and comfortably as possible. 765-423-6224 or 800-755-5650

Help at Home

Address 30 Professional Court, Suite #1, Lafayette, IN 47905
Phone (765) 449-9176 / (765) 447-073
Website http://www.helpathome.com

Description

Personal Care will be either private pay or through Area IV: Personal Care-bathing assistance, assistance with dressing, and assistance with grooming, Light housekeeping, Laundry, Meal Preparation, including shopping and assistance with meal planning, Errands or Transportation, Companionship - available 24 hours a day, if needed.

Skilled Services: will need prior approval/recommendation from the doctor: Assist with Medication Reminders, Oversee Dietary Guidelines with Meal Preparation.

Home Helpers

Address 128 McCutheon Drive, Lafayette, IN 47909
Phone 765-477-7000
Website http://www.homecarelafayette.com

Description

Can assist with any non-medical need such as: personal care such as bathing or grooming needs, housekeeping, meals, and companionship. They will work in tandem with your medical person.

Livestrong

Phone (855) 220-7777
Website http://www.livestrong.org

Description

To order one or more physical copies of the LIVESTRONG Guidebook and the LIVESTRONG Guidebook Planner & Journal, visit our online store (www.livestrong.org). The two-volume set is free, but shipping and handling charges will apply.

Lotsa Helping Hands

Website http://lotsahelpinghands.com/

Description

Easy to use private group calendar, specifically designed for organizing friends, family, colleagues & neighbors to assist loved ones in need.

With the Help Calendar, you can post requests for support - things like meals for the family, rides to medical appointments, or just stopping by to visit.

Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks.

Meals on Wheels of (Tippecanoe County)

Address 1915 Scott Street (Jenks Rest), Lafayette, IN
Phone 765-429-6325
Website http://jenksrest.com

Description

Meals on Wheels of Greater Lafayette carries on a proud tradition of bringing hot and nutritious meals to individuals who have challenges getting meals on their own. Meals on Wheels works with IU Health hospital to prepare delicious and healthy meals. As a United Way agency, we also work closely with many other organizations to make sure food insecurity and safety needs are being met in a comprehensive manner.  We work on a 5 week rotating menu with 2 entrée choices & 4 side choices everyday.  Each client customizes their menu.

Hot Meals (entrée, 2 sides, fruit, dessert, drink) $4.25 OR  Cold Meal (deli sandwich, fruit, dessert, drink) $3.25

Ensure (vanilla, chocolate, or strawberry, case of 24) $25.00. 

 

Medicare Savings Program

Website http://www.in.gov

Description

If a person has Medicare and they meet the income and asset guidelines, they may be eligible to have their Pt. B. premium paid for them by the State.

Mesothelioma Group

Address 121 S. Orange Avenue, Orlando, FL
Phone 888-708-5660
Website http://www.mesotheliomagroup.com/

Description

Our patient advocate team takes calls from all over world giving advice to patients on anything from general questions about mesothelioma, to helping already diagnosed patients find the right mesothelioma specialist closest to them. We are the middle resource connecting patients and making sure they find the best possible care, closest to them.

 

National Cancer Institute

Phone 800-4-CANCER (1-800-422-6237)
Website http://www.cancer.gov/dictionary

Description

Available in English and Spanish
Monday through Friday

Free, easy to use online cancer Terminology Dictionary.

National Coalition for Cancer Survivorship

Phone 877-NCCS-YES (877-622-7937)
Website http://www.canceradvocacy.org

Description

Free printable Care Planning Templates to help map out your care from before you begin treatment through when your treatment ends.  - AND the Cancer Survival Toolbox:
The award-winning Cancer Survival Toolbox® is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness.

Social Security Administration

Phone 888-884-0522
Website http://www.ssa.gov

Description

SSDI/SSI – Compassionate Allowances and Expedited payments (presumptive eligibility for certain cancer diagnoses).  They should file online for SSD and complete the disability report ASAP. Then, call  800-772-1213 that same day before 7pm  to schedule an appointment.  They won’t have anything available, but if they tell the SSA representative that they are terminally ill, we will get a message and will contact them ASAP to address both SSI and SSD.

 

Susan G. Komen

Phone 800-462-9273
Website http://ww5.komen.org

Description

Whether you need information, assistance, emotional support or just someone to talk to, we can help. Learn more through the links below, by calling the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877-465-6636

 

The Fearless Caregiver: How to Get the Best Care for Your Loved One & Still Have Your Own Life

Description

Book Resource
This books aims to arm caregivers with tools to effectively care for their loves ones through the legal & financial challenges of cancer.

Well Spouse Association

Phone 800-838-0879
Website http://www.wellspouse.org

Description

Provides emotional support to wives, husbands & partners of the chronically ill and/or disabled.

YWCA Greater Lafayette Women's Cancer Program

Address 604 N. 6th Street, Lafayette, IN 47901
Phone 765-742-4375
Website http://www.ywcalafayette.org

Description

Patient Navigation Services available for those diagnosed with Breast or Cervical Cancer once enrolled into the program. Cancer Wellness Program available as described in Nutrition and Wellness section. Funding provided for Mammograms, Pap tests and other diagnostic services/treatment related to breast and cervical cancers provided at no charge for eligible women. Referrals to volunteer wound care nurses that work with clients enrolled in our program to provide dressing changes and wound care assistance. Wound care supplies in limited quantities available to clients with breast cancer once enrolled in our program.

Program serves 23 Indiana counties. Spanish speaking staff available. “ The YWCA does not provide medical advise, consultation or direct medical care. All referrals are made for informational purposes only.”

In partnership with Purdue University Department of Health and Kinesiology; a fitness program to improve the quality of life of cancer survivors is offered at various times throughout the year. For class schedule and registration contact the YWCA.