Opinion: Election signals change in bioethics - Battles over embryonic research and abortion may be coming to an end

By Arthur Caplan, Ph.D.
Nov. 6, 2008

‘Change’ was the horse that Barack Obama’s presidential campaign rode to victory. Indeed the 2008 election will be remembered not only for Obama becoming the first African-American president, but also for its impact on core bioethical topics that have long dominated American domestic politics.

Divisive issues such as abortion bans failed to gain traction on state ballot initiatives, while newer bioethical concerns that are likely to dominate American politics for years to come, including physician-assisted suicide, emerged.

The past eight years of the Bush White House have seen stem cell research and the status of embryos at the center of the moral values debate. Obama’s election has brought the fight over embryonic stem cell research in the U.S. to an end.

Loosening stem cell research
The state of Michigan passed Proposal 2, loosening restrictions on embryonic stem cell research. This means that in Michigan — whose universities such as Michigan State in East Lansing are major biomedical research powerhouses — scientists will be able to use the excess embryos created at in-vitro fertility clinics as a source of stem cells for research, as long as they have the written consent of the parents who sought treatment.

There are now 10 states that have laws permitting embryonic stem cell research. These 10 are likely to be the recipients of an executive order that the new president will undoubtedly sign shortly after taking office, freeing up federal funds for embryonic stem cell research while laying out new regulatory guidelines.

One of the main arguments against embryonic stem cell research is that all embryos are persons from the moment of conception. The voters of Colorado were given the chance to put that view into law with the proposed Amendment 48. The so-called “Personhood Amendment” sought to define fertilized eggs as human beings, extending them constitutional rights. Coloradoans defeated this amendment by a margin of three to one.

Many, including myself, would argue that the ongoing debate over the morality of stem cell research is really just a stalking horse for the abortion debate. But efforts to further restrict abortion did not fare well at the ballot box, either. California voters rejected a proposition that would have required doctors to notify parents before performing an abortion on a minor. The initiative also would have required a two-day waiting period before minors could get abortions.

In South Dakota a measure that would have banned abortions — except in cases of rape, incest and serious health threat to the mother — also lost. An even tougher version, without the rape and incest exceptions, was defeated two years ago. The 2008 initiative went down to a resounding defeat of 55 percent to 45 percent.

Taken all together this series of votes represents an important moment in public bioethics in America. Like it or not — and I am well aware that many are not ready to let go of these issues — the nation may be starting to move past the endless battles over stem cells, embryos and abortion. Stem cell research in all forms is proceeding. Embryos are not going to be given legal status as persons. Further restrictions on abortion are unlikely.

There will still be plenty to fight over! The most important topic to emerge from this election is how Americans die and treat painful medical conditions.
Michigan became the 13th state to enact an amendment legalizing marijuana use for medical purposes. Proposal 1 passed by a margin of 63 percent to 37 percent. It allows patients with “debilitating medical conditions” to register with the state and, with the permission of a physician, legally buy, grow and use small amounts of marijuana to relieve pain, nausea and appetite loss, among other symptoms. Massachusetts decriminalized possession of one ounce or less of marijuana, shifting the penalty to a $100 fine. 

Help for terminally ill
Americans are clearly telling Washington that they want dying people to have access to whatever helps make that process less burdensome. It will be interesting to see how the new administration grapples with that message. If no one listens, then a much more controversial option may emerge — physician-assisted suicide.

Perhaps the most startling measure to pass at the state level was in Washington’s Initiative 1000, offering terminally ill people the option of physician-assisted suicide. Washington voters decided that adults who are deemed competent and have been given less than six months to live by a physician can legally request and self-administer lethal prescription medicine. The measure passed by a margin of 59 percent to 41 percent.

This surely will not be the last state-level effort to legalize physician-assisted suicide if other policies aimed at minimizing the suffering of the dying are not enacted. While I have my doubts about the wisdom of offering help in ending one’s life before offering them health insurance, I suspect it will become a political hot potato in a number of states in the next few years.
An aging population, the increasing cost of medical care and a lack of high-quality palliative and nursing-home care almost guarantee it.
The pundits will spend the next few months analyzing the election, pontificating on what led to the Obama victory and the Democrats taking greater control of Congress. They won’t find the answers if they do not pay attention to the clear messages Americans sent concerning critical bioethical questions.

Arthur Caplan, Ph.D., is director of the Center for Bioethics at the University of Pennsylvania. © 2008 MSNBC.com

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Vatican denounces embryo research


The Vatican has updated its opposition to embryonic stem-cell research, in-vitro fertilisation and human cloning in a sweeping new document.

The Catholic Church also said the morning-after pill and drugs preventing the implantation of the embryo during pregnancy were “gravely immoral”.

The rulings came in a Vatican document released to respond to scientific advances made in the past two decades.

Catholic doctrine says life begins at conception and must be respected.
Dignitas Personae (The Dignity of a Person), an Instruction of Certain Bioethical Questions, was issued by the Vatican’s doctrinal body, the Congregation for the Doctrine of the Faith, and approved by Pope Benedict XVI.

Deserving respect

The 32-page document condemned new forms of birth control that “fall within the sin of abortion”.

It also reiterated Catholic teaching that responsible human procreation should take place through an act of reciprocal love between a married couple.

It said human life deserved respect “from the very first stages of its existence and can never be reduced merely to a group of cells”.

The instruction updated the Vatican’s 1987 instruction, Donum Vitae (The Gift of Life), which enshrined the dignity of the human embryo.

But while the updated document denounced embryonic stem-cell research - which it noted invariably resulted in the destruction of the embryo - it said adult stem cell research was allowed, as the subject was unharmed by the process.

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Death on TV: assisted suicide to be screened

Steven Morris and John Plunkett
The Guardian, Wednesday December 10 2008 

A documentary that appears to show the moment when a man dies after going through with an assisted suicide was strongly criticised yesterday by anti-euthanasia campaigners and a television watchdog. 

The film, which is being screened on the Sky Real Lives channel tonight, seems to show the moment when 59-year-old Craig Ewert, who had motor neurone disease, died. It is believed this would be the first time the instant of the a person’s death in an assisted suicide has been shown on British television. 

Both the documentary maker, Oscar winner John Zaritsky, and Sky insisted that the film, Right to Die? - which is being shown at 9pm - is an important contribution to a vital debate. 

Ewert, a retired university professor from Harrogate, Yorkshire, travelled to Dignitas, the organisation in Zurich that helps people to die, because he did not want to spend the rest of his days in a “living tomb”. 

The documentary shows Ewert and his wife, Mary, exchanging a last kiss. He says: “I love you sweetheart - so much.” She replies: “Have a safe journey. I will see you some time.”
Ewert is then given a liquid and told he will die if he drinks it. He drinks through a pink straw, then asks for some apple juice and music. Shortly before his eyes close, he says: “Thank you.” 

Dr Peter Saunders, a director of the Care Not Killing alliance, branded the film “macabre death voyeurism”. He said: “This is taking us a little further down the slippery slope. It seems there is a macabre fascination in this death tourism. 

“It’s creating the impression that there is a huge demand for this. There isn’t. There are only a very few people going over to use this service but an inordinate amount of media coverage. It’s all part of a calculated campaign to get the issue back before parliament.”
Saunders, a general surgeon, said there was a danger that people could feel “subtly” pressurised into going down the same route. 

Dominica Roberts, of the Pro-Life Alliance, said the programme sent out the message that some people’s lives are “worthless”, adding: “It is both sad and dangerous to show this kind of thing on the television.” 

John Beyer, director of the television monitoring group Mediawatch-UK, said: “This subject is something that is quite an important political issue at the moment and my anxieties are that the programme will influence public opinion.” 

Zaritsky said filming Ewert’s death was the most difficult moment in his 26-year career. “When we were filming it we all had to remain very professional and just concentrate on doing our jobs,” he said. But he insisted: “I want the film to be controversial and I want people to debate it strongly.” 

The veteran documentary maker Roger Graef, who has made more than 80 films, said: “”If someone has allowed the filming to happen I don’t see a problem with that. We don’t have to watch it. We know it’s a film about euthanasia. I think it informs the debate.” 

Brian Woods, chief executive of True Vision TV, which specialises in documentaries about human rights, said: “I don’t think there is any moral problem with filming the moment of death. It is a matter of context and how appropriately and tastefully it is done.” 

Barbara Gibbon, head of Sky Real Lives, said: “This is an issue that more and more people are confronting and this documentary is an informative, articulate and educated insight into the decisions some people have to make. I think it’s important that broadcasters give this controversial subject a wider airing.” 

Asked if the actual moment of death is shown, a spokeswoman for Sky Real Lives said the crew filmed Ewert for 40 minutes as he died. But it was impossible to say at what point he actually did so. 

Last year publicity material for an ITV1 documentary claimed it showed the moment Alzheimer’s sufferer Malcolm Pointon died. It later emerged that he died two and a half days after the cameras stopped rolling. 

An Ofcom spokesman said: “All UK broadcasters must adhere to the broadcasting code which sets standards for the content of TV programmes. 

“The code contains clear rules about the portrayal of self-harm and suicide in order to protect people from harm.”

http://www.guardian.co.uk/society/2008/dec/10/assisted-suicide-television

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La Grande-Bretagne condamnée à Strasbourg pour la conservation des échantillons ADN

LEMONDE.FR avec AFP | 04.12.08

La Cour européenne des droits de l’homme a condamné la Grande-Bretagne, jeudi 4 décembre, pour sa législation qui autorise la conservation illimitée des échantillons et profils ADN des individus. Dans son arrêt rendu par la Grande Chambre, saisie dans les affaires particulièrement graves, la Cour a estimé, à l’unanimité, que le droit au respect de la vie privée et familiale de deux plaignants avait été violé.

L’affaire avait été portée devant la Cour par deux personnes dont le profil ADN avait été conservé dans les fichiers britanniques après leur mise hors de cause : un enfant de 11 ans soupçonné de vol et ensuite acquitté et un homme de 38 ans dont l’affaire avait été classée sans suites trois mois après son inculpation pour harcèlement.

La Cour a jugé “particulièrement préoccupant le risque de stigmatisation” qui découle du fait que des personnes innocentes sont traitées de la même manière que des condamnés.

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Luxembourg to strip Duke of powers over euthanasia

Tue Dec 2, 2008

LUXEMBOURG (Reuters)

Luxembourg’s government plans to strip Grand Duke Henri’s power to sanction laws after he signaled he would not sign a bill legalizing euthanasia.

Prime Minister Jean-Claude Juncker, who rushed back from an economic summit in Brussels, told a news conference on Tuesday that his government would seek a rewording of the constitution.

“That means he will only technically enact laws,” Juncker said.

Luxembourg is a constitutional monarchy in which the Grand Duke holds executive power and bills only becomes law with his signature.

Luxembourg’s parliament backed a law in February to legalize euthanasia and assisted suicide, which would add the Grand Duchy to a small group of countries that allow the terminally ill to end their lives.

The law would let those with incurable conditions die if they asked repeatedly to do so and had the consent of two doctors and a panel of experts.

It was due to have a final reading later this month.Juncker, whose Christian Social Party had opposed the euthanasia bill, said the constitution would be revised before the bill was read again and that he expected this could happen before the end of the year.

In 1990, King Baudouin of neighboring Belgium, the Grand Duke’s uncle, abdicated for a day to avoid signing a Belgian law liberalizing abortion that he opposed on religious grounds.

(Additional reporting by Antonia van de Velde, writing by Philip Blenkinsop; Editing by Charles Dick)

© Thomson Reuters 2008

 

La légalisation de l’euthanasie rejetée (France)


LE MONDE | 02.12.08 | 08h06 am

 

Il n’y aura donc pas d’instauration d’exception d’euthanasie en France. Sans surprise, la mission d’évaluation de la loi sur la fin de vie, présidée par le député Jean Leonetti (UMP, Alpes-Maritimes), a rejeté toute légalisation de l’aide active à mourir, même pour des malades incurables réclamant la mort.

 

M. Leonetti qui a rendu ses conclusions, mardi 2 décembre, au premier ministre François Fillon, ne préconise aucune modification de la loi du 22 avril 2005 qui porte son nom. Il propose néanmoins l’instauration d’un Observatoire des pratiques de la fin de vie et la création d’un médecin référent en soins palliatifs, qui pourrait jouer le rôle de médiateur en cas de situations de fin de vie complexes, comme dans l’affaire Chantal Sébire.

La mission d’évaluation de la loi sur la fin de vie avait été créée après le suicide, le 19 mars, de Mme Sébire, une patiente atteinte d’une tumeur au visage devenue incurable et qui réclamait le droit de mourir. Devant l’émotion suscitée par le combat de cette femme plusieurs personnalités s’étaient prononcées pour l’instauration d’une “exception d’euthanasie”. Il s’agissait d’accéder, à titre exceptionnel, à la demande d’un malade en situation d’incurabilité si celui-ci réclamait la mort, en conscience.

 

Le député Gaëtan Gorce (PS, Nièvre) qui figurait avec Michel Vaxès (PC, Bouches-du-Rhône) et Olivier Jardé (Nouveau centre, Somme), dans la mission menée par M. Leonetti, plaidait notamment pour une telle solution.

 

Après l’avoir examinée “avec beaucoup de sincérité”, M. Leonetti a finalement écarté cette hypothèse. Il estime qu’un comité d’experts, s’il était appelé à se prononcer sur les demandes d’euthanasie présentées par des patients, “n’aurait pas de légitimité à se placer au-dessus des lois”.

 

M. Leonetti a également rejeté l’idée de créer une circonstance atténuante spécifique en cas de crime commis par compassion : il considère que les juges, s’ils sont mieux informés sur le contenu de la loi, sont “d’ores et déjà en mesure d’utiliser les ressources de la procédure pénale pour absoudre ou juger avec mansuétude”.

 

ÉVITER LES AGONIES DOULOUREUSES

 

Pour M. Leonetti, le droit de mourir, qu’il s’agisse du suicide assisté (fourniture d’un produit létal) ou de l’euthanasie (geste actif commis sur un patient) ne peut être considéré comme “un droit créance”, qui obligerait la société à l’égard d’un individu. A cet égard, le député relève que le suicide ne constituant pas une infraction, l’aide au suicide – “le fait de fournir à quelqu’un qui a la volonté de se suicider les moyens de le faire” –, n’est pas pénalisable. Seul le délit de provocation au suicide peut être poursuivi.

Plutôt que d’accorder un droit à mourir, M. Leonetti souhaite éviter certaines dérives dues à la méconnaissance de la loi sur la fin de vie. Il propose de préciser, dans le code de déontologie médicale, que les médecins ont l’obligation d’accompagner, par une sédation terminale, les patients dont on arrête les traitements actifs et qui sont inconscients. Cette mesure devrait permettre d’éviter les agonies douloureuses, comme celle du jeune Hervé Pierra, en état de coma neurovégétatif et qui a convulsé pendant six jours après l’arrêt de son alimentation et hydratation.

 

Les situations de fin de vie pouvant déboucher sur des incompréhensions entre les familles et les équipes soignantes, M. Leonetti recommande l’instauration d’un médecin référent en soins palliatifs dans chaque département. Cette personne tierce pourrait dénouer des situations complexes et, espère la mission, éviter la cristallisation médiatique autour de cas symboliques.

 

Par ailleurs, les députés proposent la création d’un Observatoire des pratiques médicales de la fin de vie : aujourd’hui, une seule étude a été réalisée sur la mort à l’hôpital montrant qu’un quart des patients seulement décédaient entourés de leurs proches.

Enfin, la mission préconise l’expérimentation d’un congé d’accompagnement d’un proche en fin de vie, à domicile, et qui pourrait être rémunéré par l’assurance-maladie. Les députés estiment que le coût d’une telle mesure pourrait être compensé par les économies réalisées par un nombre moindre d’hospitalisations. Il permettrait d’éviter la pratique, courante, des faux arrêts maladie accordés par des médecins aux proches d’un mourant.

 

Cécile Prieur (lemonde.fr)